Supporting research and access to treatment for people living with rare conditions
Serving rare disease communities
BOBI awards winner 2023
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Find out more
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BOBI awards winner 2023 - Find out more -
We put patients at the centre of our business.
Delivering unique research insights, outstanding support for people taking part in clinical trials and access to new treatments. We help patients with reimbursement, and provide expert rare disease communications.
Our services
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Clinical Trials Support
We provide patients with access to worldwide clinical trials through personalised logistics support and reimbursement.
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Research and Evidence
We undertake novel research into the impact of rare conditions on patients and their families and curate evidence to fully understand the benefits of treatments.
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Medical Communications
We develop communications that raise awareness and understanding of rare diseases, from patient-friendly materials to scientific publications.
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Managed Access Programmes
We deliver Managed Access Programmes that provide bespoke data collection, analysis of patient-reported outcomes and reporting results to stakeholders.
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Advice
We have specialist knowledge of rare conditions and offer expert advice in all aspects of rare diseases.
About us
Our company was founded in 2012 to boost research and improve access to care and treatment for MPS and wider rare disease communities. Starting with just two staff supporting patients taking part in clinical trials, we’ve grown and diversified to offer a comprehensive range of services for pharmaceutical and patient organisation clients.
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Publications
We undertake novel research into the impact of rare conditions on patients and their families and develop communications that raise awareness and understanding, from patient-friendly materials to scientific publications.
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News
Our work focuses on bringing to light the needs of people with rare and complex diseases and ensuring that they are able to engage with all forms of research that might enhance their lives.
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Brochure
View our brochure to learn more about us and how we can support your work.
Case Studies
Our experienced clinical trial support team are always on hand to deal with the difficult and challenging situations faced by clinical trial participants.
Read our case studies to learn more about how we manage these challenges.
